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The Rural Monitor, Volume 11, No. 2, Fall 2004

In this issue:

  • Cover Story
    Rural Life Not Always Idyllic for Retirees by Thomas D. Rowley
  • Rethinking Human Services
    Restructuring Human Services in Rural Communities: Thinking Outside the Box
    by Tom Corbett, Ph.D.
  • Look What's Coming
    Picture a Health System... by Wayne Myers, M.D.
  • Around the Country
    Funding and information resources: Alzheimer’s Disease Demonstration Grants Program; Online Pesticide Poisoning Diagnostic on the web; Delta Rural Hospital Performance Improvement Project
  • Spotlight on Rural Research
    Service Delivery for the Elderly by Thomas D. Rowley

This issue is also available in PDF.


Rural Life Not Always Idyllic for Retirees

By Thomas D. Rowley

Michael Payne, a driver for the Sage Stage in Modoc County, California, helps Dawn Kanagy go downtown for errands.When Dawna Kanagy retired 16 years ago, the Rialto, California, public school teacher packed up and headed north to be close to her sister and live in the mountains. She opened a bookstore in tiny Alturus in northeastern California. Her daughter followed soon after and bought the local movie theater.

"It's a lovely town," Kanagy says. "There's blue skies and fresh air. The people in the stores know you by name. I love it here."

Kanagy affirms this even though at 73 she now has osteoarthritis in her knees, is diabetic and is legally blind from macular degeneration, all of which makes life in a remote rural area challenging, to say the least.

Fortunately for Kanagy and other seniors in the region, five years ago the county established a subsidized transportation service to take them, and anyone else, wherever they need to go—the doctor, the store, even to the casino for a little fun.

Kanagy says that, overall, she has no regrets about her move. Others who have retired to rural areas may have a different perspective.

To be sure, retirement offers many the chance to pack up and head for the country, its peace and quiet, low prices and easy living. To others, however, the results of such a move are less than idyllic. Medical care, social services, cultural activities and transportation—things they took for granted in the city—may be harder to come by in some rural areas and completely unavailable in others.

Lacking services, many rural people rely on friends, families, churches and other organizations to provide care.

"Rural people understand that the informal support network is really what we depend on here," says Tom Briggs, Director of the Delaware County Area Agency on Aging in the Catskills of New York.

Newcomers to rural areas, however, must learn to connect to that informal network. That can be challenging for some. Those who don't make the connection must look to more formal services for help, if they exist. As a result, Briggs says, newcomers are more likely to call 911.

Recognizing these problems, experts advise would-be rural retirees to think about all the services they need now, as well as the ones they might need as they grow older and frailer, and see if those services are in fact available. In short, they say, look before you leap.

"It's the Boy Scout motto," says Dennis Dudley, an Aging Services Program Specialist in the San Francisco Office of the U.S. Department of Health and Human Services' Administration on Aging. "Be prepared. Ask the questions. Know what you're getting into."

Dudley, whose region includes several western states, tells of retirees selling their homes in San Francisco and moving to northern California for the natural beauty and cheaper land, and then finding out that, sometimes, the services they need simply aren't there. At the most basic level, that can mean no one to shovel snow in an area that, unlike the Bay, gets lots of it. At another level, it can mean no way to get around—to shop, to socialize, or worse, to get medical care. Once, he says, a Greyhound bus driver called him on behalf of an elderly woman who had just gotten off the bus in one of the small towns on the route and was demanding to know where the (nonexistent) local senior transportation system was.

Young people ask what kind of schools an area has, Dudley says. Seniors need to ask about health care and services, not just the price of property. Sometimes, he adds, it is the adult children who want mom and dad to move closer to them, without thinking about what services their parents will need.

"There are a lot of things you have to take into consideration," Dudley says. "You're going to have fewer services."

In the early years of retirement, fewer services may not be a problem. Indeed, fewer services can be linked to fewer taxes, which retirees may well find attractive. Besides, the so-called "young old" tend to have fewer medical conditions and fewer needs than older seniors. But as people age, their needs increase. Planning ahead is therefore critical.

"The young elderly don't need services," says Pam Matura, who directs an Area Agency on Aging in rural Ohio. "Problems come at 75-plus with health conditions."

"People don't ask the right questions when they're thinking about retirement," says Audrey Flower, Executive Director of the Madrone Hospice in Yreka, California. "They need to think about services and the support systems. They need to realize that they're not always going to be so independent [as they are when they retire and move]."

The Sage Stage

Modoc County sits in the northeast corner of California. Its 9,500 residents are spread over a territory the size of Connecticut, giving it just two people per square mile. With natural wonders and lots of public land, Pamela Couch, Director of the Modoc Transportation Agency, describes it as "gorgeous with no tax base." Not surprisingly, transportation is a real issue.

Since 1999, the agency has run the Non-emergency Medical Transport Project, also known as the Sage Stage, a low-cost bus service that helps seniors (and others) go where they need to go and get the services they need to get. Using funds from federal, state and local governments (fare revenues cover only 10 percent of the actual costs), the Stage takes residents to destinations around town as well as cities far away—Klamath Falls, Oregon (100 miles), Redding, California (143 miles), and Reno, Nevada (190 miles).

The Stage, says, Couch, is the region's only transit option. Greyhound abandoned its routes through the county in the late 1980s and there are no taxis.

"There's no way out," she says.

For newcomers to the area, that fact can be quite troubling. A lot of people, Couch says, moved to the area for the rural lifestyle without thinking about the distance to specialized medical care. Many are too elderly or too infirm to drive.

"We're the link between them and services," Couch adds.

The Stage is actually a fleet of six buses. And while many riders use the Stage to get to medical care, the service is not acute transport. Rather, it takes riders to doctors' appointments, regular treatments for chronic conditions and even to visit family members in the hospital. Nor is it solely for medical destinations; the Stage also travels to airports, shopping, and entertainment destinations—all at low-cost, subsidized rates.

"We pretty much take folks literally where they need to go in those terminus cities," she says. "Once you've gone a hundred miles, it's not much difference to take them on to the doctor or even their sister's."

After dropping people off, the bus lays over to give riders time to get treatment, have lunch and perhaps do a bit of shopping before heading back.

Finally, although 80 to 90 percent of riders are elderly or disabled (service is curb to curb for the elderly and door to door for the disabled), others use it too.

"I myself use the bus," says Couch. "My family's in Southern California."

Other regular riders include a 91-year-old woman who goes to dialysis three times a week in Reno, for $18 roundtrip, and another just over 80, who just gets on the bus to ride around and socialize.

After a stroke kept him from driving, Jack Shepherd used the service to get everywhere, including therapy in Klamath Falls.

"It made all the difference in the world to me," Shepherd says. "There are no real buses, no trains, a very, very small private airport. And other than that there is no transportation in Alturas. The service does a real good job, especially for people who are older."

Dawna Kanagy, a 73-year-old artist and retired teacher, loves the Sage Stage. She says she couldn't get the kind of service provided by the Stage in the big city. Before the Stage, Kanagy was homebound for three years. She now relies on it to take her everywhere—on Mondays to the casino and then the grocery store, on Fridays to the library, Denny's for coffee and then the senior center for bingo.

"Hurray for Sage Stage," she says. "It's given me life again. Sage Stage is the best thing that's happened to me."

Three Big Challenges

While conditions around the country vary, experts from all corners agree that the three biggest challenges facing rural seniors—newcomers and old timers alike—are housing, access to care and transportation. They also agree that the three are interrelated.

Housing

In many rural areas, housing is relatively cheap compared with urban areas. But the purchase price by itself can be misleading. Seniors often need more than just a house. They need help with maintenance (snow shoveling, lawn care and the like) if they are to stay there. Because of the out-migration of working-age people in many rural areas, such maintenance services are often hard to find.

On top of that, many elders will ultimately need assisted living facilities and/or skilled nursing facilities (aka nursing homes) for when they can no longer live independently.

Matura knows that from experience since Ohio ranks near the bottom in offering assisted living to low-income people, which limits options for aging in place.

Giving seniors the opportunity to avoid being placed in nursing homes is supported by the elderly and elderly advocates, but it requires resources that may not always be available in rural communities.

In its 2004 report to the Secretary of Health and Human Services, the National Advisory Committee on Rural Health and Human Services (NACRHHS) finds that rural areas as a whole have more nursing home beds per 1,000 people than do urban areas (66.7 versus 51.9). However, the supply of rural nursing beds is due, in part, because rural areas have fewer home- and community-based services that help keep seniors out of nursing homes. In addition, the overall average aside, some rural areas have no nursing homes.

Access to care

As with most things in rural America, sparse population and long distances increase the per-unit cost of many medical and social services to the elderly. Relatively more people who are poor (12.4 percent of rural seniors live in poverty compared with 9.1 percent of urban seniors) and people who have no health insurance compound the problem by reducing the revenues for service. Therefore, private providers are less inclined to locate in rural areas.

As for public providers, short and declining funds stand in the way of their offering services.

And for both public and private sectors, qualified service professionals are difficult to get and keep. According to the NACRHHS, the health and human service infrastructures in rural areas are much worse than those in urban. That makes recruitment and retention of personnel much more difficult. As a result, shortages of medical and social services plague many rural seniors, reducing their quality of life and limiting their ability to remain in their own homes.

With no oncologist and no cardiologist in Yreka, for example, Flower says cancer and heart patients must travel an hour north to Medford, Oregon or an hour and a half south to Redding, California. In addition to the time required, the travel involves high mountain passes and, at times, extreme weather.

Likewise, seniors in Matura's rural Ohio district travel 185 miles roundtrip for dialysis. "It's nothing," she says, "to drive 200 miles for care."

Transportation

According to the NACRHHS report, 40 percent of rural residents live in areas with no public transportation system, 80 percent of rural counties have no public bus service, and, though the automobile is the only mode of transportation, 57 percent of rural residents do not own a car. Taxis? Not in most rural areas. Consequently, the rural elderly depend on family, friends and neighbors to get them where they need to go.

As a result, the Committee concluded that lack of adequate transportation is the single most pressing issue facing rural elders. Many rural seniors simply have no good way to reach the services they need. What's more, recent cutbacks of commercial intercity bus services mean the challenge will only get worse.

Across the board, rural aging experts bemoaned how difficult it is to get people to services and appointments.

"In rural areas, we are transportation disadvantaged," Matura says.

Tom Briggs tells the story of an elderly woman who moved to his area last year and bought an idyllic little house up in one of the hollows four miles from the main road and ten miles from the nearest community. The woman does not drive nor own a car. The realtor had assured her—incorrectly—there would be public transportation. As a result, the woman would have to walk 10 miles to get to town for groceries and any services she might need.

"In the middle of winter, that's life threatening," Briggs says. "We ended up driving our bus out to pick her up. That costs us money. It slows the system down. It forces us to have to rethink how we provide services to people."

And, he says, "This is not that unusual."

Too Soon, Too Late

The specific results of the lack of housing, care and transportation services may vary from place to place and person to person, but the overall toll it takes on rural seniors does not. For some, it means moving to an assisted-living or skilled nursing facility too soon; for others it means moving too late. For all, it can mean a decrease in quality of life.

In the Catskills, Briggs sees people who are frail choosing to live in assisted living (if available) or nursing homes earlier than their conditions warrant, because the services to keep them at home simply are not there.

"They kind of jump over the next transition," says Briggs. "It's premature institutional placements."

In Nevada, the opposite is true, according to Carol Sala, Administrator of the Nevada Division for Aging Services.

"Nevada kind of has a frontier attitude," she says. "People stay in their homes longer than they need to."

Reinforcing that mentality is a lack of services brought on, in part, by low tax rates.

"We do not have a lot of services out in the rural areas," Sala says. "One of the reasons people move here is because of low taxes. That means less service."

In either case, rural seniors often are not getting care appropriate to their individual needs.

Addressing the Problems

To help ensure that rural seniors have what they need, Briggs recommends three approaches.

Wellness promotion

One low cost way of meeting service needs is to promote wellness among seniors.

"We almost have to create a culture of wellness in this country," Briggs says. "It can't be just the most educated and well-to-do that exercise and eat right. It has to be almost a patriotic duty that we take care of ourselves."

Education of potential immigrants

The experts agree that all immigrants to rural areas, especially those like the elderly who may need special services, need to educate themselves on what is and is not available in the country. Dennis Dudley thinks communities need to help provide that education. He sums up the hard choice faced by communities attracting retirees: make sure the services are available or warn seniors that they are not.

Economic development

With older people moving in and young people moving out in search of jobs, education and other opportunities, many rural areas face an imbalance in those demanding services and those providing them.

On top of that, dwindling revenues and tax bases crimp rural communities' abilities to pay for services. What's needed in many rural areas is an economic shot in the arm.

Ironically, many rural areas around the country—particularly those closer to metropolitan areas and those with amenities like good climate and beautiful scenery—are recruiting retirees as an economic development strategy, and succeeding. Indeed, in Briggs' area, he says retirees are "the only show in town."

Immigration is not all bad, says Briggs, noting that most of the retirees to his area are wealthier and younger.

"For the most part, we're benefiting from this immigration," he says. "They enrich the economy."

Still, Briggs points out, even rural communities that benefit from the influx of retirees would do well to plan how they will meet these seniors' ever-increasing need for services as they grow older.

Get Connected

For more information on the people and sources described in the cover story and other articles in this issue, see the following web sites:

The 2004 Report to the Secretary: Rural Health and Human Service Issues by the National Advisory Committee on Rural Health and Human Services
http://ruralcommittee.hrsa.gov/nacpubs.htm

SouthEast Alaska Regional Health Consortium
http://www.searhc.org/

"How Poverty and Policies to Alleviate Poverty Are Shaped by Local Characteristics" by Rebecca Blank
http://www.rprconline.org/WorkingPapers/WP0402.pdf

Case Studies of Service Integration – The Rockefeller Institute of
Government (links to the summary report by Mark Ragan)
http://www.rockinst.org/quick_tour/federalism/service_integration.html

RAC Transportation Information Guide
http://www.raconline.org/info_guides/transportation


Rethinking Human Services

by Tom Corbett, Ph.D.

Restructuring Human Services in Rural Communities: Thinking Outside the Box

In the last issue, I suggested that disadvantaged citizens in rural areas are further penalized by what Richard Nathan has called the "silo-ization of human services." As programs and service systems multiplied over the years, needy families increasingly were faced with an almost unfathomable fragmentation of strategies designed to help them.

Why might this be important? For one thing, there is widespread evidence that many in need simply do not access the help they need. Estimates suggest that 20 percent of eligible low-income workers do not receive a refundable credit under the Earned Income Tax Credit program. Participation rates of impoverished families in other programs are much worse. Almost half of eligible adults miss out on Medicaid; close to 60 percent miss out on Food Stamps, and only a fraction of low-income workers struggling in the secondary labor market take advantage of federal training programs.

Low participation by those who really need help is only half the problem. Rebecca Blank, director of the National Poverty Center at the University of Michigan, in remarks prepared for a conference on The Importance of Place in Poverty Research and Policy suggested that the "…reasons people are poor in rural areas are many and intertwined, and as such, policies and programs to address rural poverty should focus on multiple, and complementary, strategies."

Many rural families need more than one form of assistance at the same time. Just think about the service needs required by rural families facing economic and social dislocation as their traditional agriculture-dominated economy collapses. Yet, trying to successfully navigate through a labyrinth of separate programs places an undue burden on these rural service consumers.

Many argue that the obvious solution is service integration, the blending together of services in ways that blur the programmatic and policy distinctions among different systems. Service integration is often characterized as the "Holy Grail" of public policy—ever sought but never quite realized. This lure of service integration is seductive because it promises better outcomes through more effective services delivered in a more efficient manner.

Oddly enough, this widely accepted promise of better human services is, in reality, difficult to define. We are not sure what it is. Mark Ragan, after visiting a number of one-stop service centers and other integrated service models for the Annie E. Casey Foundation concluded that service integration can mean many things:

There is no single answer. Based on observations at the sites visited for this study, service integration is a combination of strategies that simplifies and facilitates clients' access to benefits and services. Each site has implemented a distinctive mix of strategies, processes, and partner agencies.

Given this diversity of program models, how should we begin to think about service integration? As a starting point, we might profitably consider the following as attributes of a fully integrated system:

  1. Families would have easier access to a broader range of services and assistance than are available under existing service delivery methods.
  2. Families would have access to individualized service plans that accommodate the diverse and complex circumstances that motivated them to seek help in the first place.
  3. Service plans would be able to accommodate multiple issues simultaneously.
  4. Service plans would respond to changing circumstances and could be modified as progress is made or new issues arise.
  5. Families would at least have the potential of engaging the service system at different levels of intensity, from self-initiated and self-directed forms of help to intensive interactions with multiple programs.
  6. The focus of both the clients and the system would be on achieving individual and family goals rather than participating in a particular program.
  7. The community would come to see the system as a strategy for resolving individual, family, and community challenges rather than as an agency where specific programs are located.

Clarity of concept is an important element of good policy making and a better and more universally accepted understanding of service integration is one key to advancing it. We need to develop a common vocabulary and conceptual framework so that communicating with one another about service integration is possible.

Apparently, there are many ways to put integrated service models together. But what ultimately defines such initiatives is how they affect individuals and families as they seek help. If a new way of organizing services does not change the consumer's experience in a positive way, by delivering accessible services, more effectively and efficiently, there is little reason to introduce the changes. After all, every policymaker and practitioner I have met to date makes it clear that service integration is very hard work.

In the next article, we will discuss some basic approaches to integrating services.

Tom Corbett has emeritus status at the University of Wisconsin-Madison and is an active affiliate with the Institute for Research on Poverty where he served as Associate Director. He has worked on welfare reform issues at all levels of government and continues to work with a number of states on issues of program and systems integration.


Photo of Wayne Myers, MDLook What's Coming

by Wayne Myers, M.D.

Picture a Health System . . .

In previous columns I've argued that our current approaches to health care are failing because they are too expensive and too dangerous. Health expenses are going up at over 12 percent per year, while the non-health part of the economy is growing at a rate of less than two percent. Employers are using various exit strategies regarding health insurance but they are getting out. More people die every year from hospital mistakes than die of car wrecks or influenza.

Cost experts say one reason our care is so expensive is that it is fragmented into hundreds of thousands of small independent units. The overhead costs of each one of these managing themselves and their billing are enormous, probably a third of our total health care outlay. This fragmentation is also a big part of the safety problem for two reasons. First, people do make mistakes; even doctors and nurses. If the consequences of these mistakes are to be avoided, systems need to be in place to detect and fix the errors before they hurt people. It is hard for small units to develop the information systems that can catch these errors. Second, many of the errors creep in when patients and information move between organizations as they must for any serious episode of care. If we can pull some of the fragments of health care together into systems of care we have a chance to cut costs and hurt fewer people.

If system development has implications for controlling medical errors, shouldn't we be hearing about it in the medical liability controversy? One strategy for reducing liability costs is to reduce mistakes! In a commercial airline flight the lives of some hundreds of people depend on the decisions of the pilot. Why are we not hearing about pilots quitting in droves because their liability insurance costs too much? There are two reasons. Information and hardware systems in air travel prevent or detect most human errors so they very rarely kill people. In the rare event of an accident, society looks for a system failure, not just a scapegoat. You can't put the wrong fuel in a plane. The hardware won't let you. But you can certainly put the wrong I.V. in a patient.

Rural communities seem more likely than large cities to be able to pull together model systems of care simply because they are smaller and less complex. Think of your own community. If you were going to outline a consolidated health care system for your region what would it look like? Who would "own" the system? Who should hire and fire the managers? Under what incentives should system managers work?

At this point one's philosophy of social organization comes to the fore. Some will no doubt argue that commercial free enterprise is the way to go. Private business supposedly does everything better and cheaper. If you believe that you might be trying to have the doctors form a corporation to acquire the hospital, drug stores, nursing home and assorted agencies. That model was more common in past simpler days but examples are still to be found. I don't know of situations where local investors have taken the lead but there may be some. In general the private sector has gone for buying up lots of hospitals, or pharmacies or nursing homes rather than building integrated systems of care. I suspect this is because not many managers are good at managing different kinds of business. The private model also needs competition to keep it honest. Few urban and fewer rural models can afford redundant competing systems.

My bias is toward consumer-controlled health care. My favorite models at the moment are the Regional Health Corporations of rural Alaska. They are comparable to Native American Tribal organizations. Each is governed by a Board made up of representatives of each community served. The Corporation owns the regional hospital as well as a clinic in each subscribing community, the mental health and substance abuse treatment agencies, EMS and, in some regions, a long term care facility. The corporation pools revenue from all sources—Indian Health, Medicare, Medicaid, private insurance, state program funds—to meet regional needs.

We need, and lack, comparative performance information on different models of care. In its absence you should begin thinking about organizational possibilities for your community. It is a matter of life, death, money and power; all the biggies.

Wayne Myers, a pediatrician, founded the University of Kentucky Center for Rural Health and served as its director. He also served as director of the Office of Rural Health Policy in the Department of Health and Human Services' Health Resources and Services Administration. He is a past president of the National Rural Health Association and currently serves on its Board of Trustees.


Around the Country

Rural Alzheimer's Patients Get Help

A Boy Scout merit badge in West Virginia and support for caregivers in Maine are just two of the programs currently funded by the Alzheimer's Disease Demonstration Grants Program. The federal program helps state agencies find flexible and innovative ways to serve families of Alzheimer's patients and those with related dementia.

Since 1992, the program, which is operated by the U.S. Department of Health and Human Services' Administration on Aging (AoA), has given three-year grants to states for the purposes of providing direct service, administration, outreach and education. The grants require an escalating match—25 percent in year one, 35 percent in year two and 45 percent in year three. In addition, half of the grant and match must go to direct service. The maximum grant amount is $350,000 per state per year.

According to AoA Aging Services Program Specialist Lori Stalbaum, the beauty of the grants is their flexibility, allowing states to determine where and how to target and utilize the funds within six broad categories of direct service: home health, personal, day, companion, short term care and respite care.

As a result of that flexibility, innovative efforts come about. West Virginia is working with Boy Scouts to develop a merit badge for caring for Alzheimer's patients, which will teach youngsters what the disease is like and help them understand what the patients need.

Other states have used the money to help assemble care teams—groups of volunteers who provide specialized services such as hair dressing, lawn mowing and the like.

"The flexibility allows states to tweak and fine tune things as they go," Stalbaum says. "It's a learning process."

Because it is a learning process, states may apply more than once for the grants. However, they must do something different with the money each time, even if the new effort builds upon previous ones.

In fiscal year 2004, AoA awarded 38 demonstration grants. One of those grantees is Maine, in its third go round. One of the most rural states, Maine is using the grant to focus on family member caregivers through a Caregiver Companion Program.

"They're really the backbone of the home care system," says Romaine Turyn, the state's program director. "If something happens to them, the whole care plan for that person could be in jeopardy."

Unfortunately, and not surprisingly, those caregivers are burning out, Turyn says. The Maine Caregiver program seeks to reduce caregiver stress, burden and depression—to keep them from burning out.

To achieve that, the program sends Alzheimer specialists to visit caregivers at home to give them information about the disease, including what to expect throughout its progression, and tips on dealing with the difficult behaviors that often accompany it. Specialists will also look at the house and suggest ways to make it a more accommodating environment. Finally, caregivers who are depressed will be able to receive mental health care.

Rural Maine, like many other rural areas, has a shortage of providers trained in dementia care, so specialists in the program are not necessarily highly trained individuals but people who have been caregivers themselves and know what it is like.

Family caregivers are very isolated geographically, Turyn says. They tend not to want to leave home even to shop. Some of these caregivers haven't been out of the house with the person with dementia in a very long time. Sometimes they just need a break, she says.

For information on the program, see http://www.aoa.gov/alz.

Pesticide Poisoning Help Online

In many agricultural areas, pesticide poisoning is a real concern. Yet many clinicians have little training in dealing with it. Now, the Online Pesticide Poisoning Diagnostic is helping health care professionals and others recognize, diagnose and report pesticide-related illnesses.

The project is a joint effort between the Pesticide Action Network North America (PANNA) and the Northwest Regional Primary Care Association (NWRPCA). PANNA—one of five PAN Regional Centers worldwide—strives to replace pesticide use with ecologically sound and socially just alternatives by linking local and international consumer, labor, health, environment and agriculture groups into an international citizens' action network. NWRPCA works to ensure equal access to high quality, primary health care for all residents living in Washington, Oregon, Idaho and Alaska by providing tools and services that support community health centers.

The online tool provides symptom, first aid and treatment-related information for some 1,900 pesticides. It allows users to search for possible pesticide poisoning agents by entering observed symptoms, pesticide active ingredients, product name, pesticide use type, crop or application site and/or geographic location.

In addition, the web site provides a wealth of information on pesticides and a helpful tutorial. Information on the site comes from the U.S. Environmental Protection Agency (EPA), U.S. National Toxicology Program, and International Chemical Safety Cards. Funding for the project came from the EPA, the Northwest Regional Primary Care Association (through a grant from HRSA) and the David B. Gold Foundation.

According to NWRPCA's Anne Powell, clinicians at community and migrant health centers see a lot of migrant seasonal farmworkers exposed to pesticides. They don't always recognize the problem for what it is, because the symptoms can be minimal and may be common to other illnesses. This tool helps them accurately diagnose and treat the condition.

Powell also notes the value of the tool's reporting mechanism, which walks users through the process for reporting pesticide poisoning. "That's important," she says, "because there's a lack of reporting. This will help improve policies and regulations."

The tool is available free of charge at http://www.pesticideinfo.org. For information, contact Anne Powell of the Northwest Regional Primary Care Association at mreeves@panna.org or (415) 981-1771.

Delta RHPI Project Helps Small Hospitals

Two years after participating in the Delta Rural Hospital Performance Improvement (RHPI) Project, a small hospital in Arkansas has been named the 2004 Top Leadership Team in the small hospital category by HealthLeaders, a media company that supplies business information to healthcare executives and professionals.

Since receiving comprehensive and targeted consultations through the RHPI Project, Lawrence Memorial Hospital, a 25-bed critical access hospital in Walnut Ridge, has turned a minus 15 percent margin into a positive 3.5 percent margin, cut receivable days from 124 to 49 and reduced turnover from 40 percent to 16 percent. According to the HealthLeaders web site, the hospital's metamorphosis was the product of improved teamwork that led to data sharing, new service lines and incentive programs. (Earlier efforts had gotten a one percent county-wide sales tax dedicated to the emergency department and critical access hospital designation.)

The hospital also opened an auto shop where the hospital's 300 employees can get their cars repaired at reduced rates, which saves them time, boosts morale and generates revenue for the hospital. Other added services include a catering service to the community, a cardiac rehabilitation unit and a sleep lab.

Through staff meetings, retreats, and sharing of performance data, hospital leaders were able to correct long-standing problems in communication among the various departments. Those corrections helped people see how, for example, staff shortages in nursing and radiology hampered clinical care departments and prompted the use of expensive temporary personnel.

According to Ernest Briner, vice president of support services at Lawrence Memorial, the hospital put performance measurements into place and publicized them so everyone could see how well a department was or was not doing.

"We had nothing to hide," he says. The hospital showed residents that its quality was equal to that of larger facilities.

As a result of all these efforts, Briner says, "our numbers started to come back up. Things are looking really good."

So good, in fact, that the hospital is undertaking a $1.4 million expansion of its emergency department.

"It was a team effort. It took everybody to make this thing turn around," he says. "It was a great honor to receive this award. It did a lot for the esteem of the hospital. It did a lot for the community."

The Delta RHPI Project, a demonstration program administered by the Office of Rural Health Policy in the Health Resources and Services Administration, provides on-site technical assistance to hospitals in the Delta region to help them improve their financial, clinical and operational performance. The Project also collects and disseminates business tools, information and databases and works with state and regional agencies to help build capacity to provide technical assistance to rural hospitals in the Delta.

For more information on Lawrence Memorial Hospital, see http://www.lawrencehealth.net. For more information on the Delta RHPI Project, see: http://deltarhpi.ruralhealth.hrsa.gov


Spotlight on Rural Research

by Thomas D. Rowley

Service Delivery for the Elderly

As the elderly population grows in the United States, programs that offer services to the aging will need to evolve and expand to meet their changing needs. Two new reports look at service delivery to rural (and other) elderly. Another report focuses on elders in Appalachia.

Ham, Goins and Brown (ed.) Best Practices in Service Delivery to the Rural Elderly. West Virginia University Center on Aging, 2003.

This report, prepared for the U.S. Department of Health and Human Services' Administration on Aging, covers the waterfront of issues in rural elder services. The list of authors is a who's who of experts in rural health and human services from around the country.

The rationale for the report lies in the fact that the rural elderly face obstacles in staying healthy and staying at home over and above those faced by their urban and suburban counterparts. According to the report, "their care and wellbeing, and indeed their quality of life, is frequently impaired by such issues as lack of nearby younger family members (or lack of any younger individuals to help—paid or unpaid), poor access to transportation, non-availability of many services generally regarded as "standard" care for the urban/suburban population, lack of education, including both illiteracy and other educational disadvantages, as well as a lack of knowledge of the potential for interventions, medical care and support services, and, underlying all, the poverty that so often accompanies rural living."

While each of the report's 13 chapters offers rich analysis, the final chapter provides a concise summary of best practice principles and a set of policy recommendations, or a "Plan of Action on Rural Aging." These principles and recommendations are based on demonstration projects, contributions of national experts on rural aging programs and policy, and national studies of best practices.

As for best practices, the chapter highlights four major features found in successful programs:

  • New and innovative programs are developed to serve clear, unmet needs.
  • Programs bring together new fiscal packages and funding streams integrated to support the programs.
  • New agency coalitions and partnerships emerge, which did not work together before, to shape the service delivery system of the program.
  • Program evaluation outcome measures are developed to assess the impact of the program on clients receiving services and benefits.

As for policy recommendations, the report emphasizes three cross-cutting issues that must be considered in order to form a relevant and coherent structure to rural aging policy:

  • An economic development policy in rural areas to provide the workforce and revenue base upon which to build elder services;
  • A standardized definition of "rural" acceptable for targeting programs; and
  • An integration of the many fragmented federal and state agencies and programs that comprise the rural service delivery puzzle.

The report is available at: http://www.hsc.wvu.edu/coa/publications/best_practices/best-practices2003.asp.

Haaga, J. The Aging of Appalachia, Population Reference Bureau, April 2004.

Noting that the U.S. population is aging less rapidly than that of other rich countries because of higher immigration and fertility rates, this report points out that Appalachia is, in fact, graying at a faster pace and the proportion of its people over age 65 is higher than the rest of the nation (14.3 percent compared with 12.4 percent). It then asks the question: Does it matter much for the region to be ahead of the curve, to be older than the nation as a whole?

To address that question, the report uses Census 2000 data to show how and why the age structure of Appalachia differs from the national average and discusses implications of that age structure. It also argues that the implications are not all negative. "The changing age structure will be an important fact of life for decision makers in both the public and private sectors in Appalachia in coming years—but not a dire threat to standards of living.

In arriving at that conclusion, the report asserts that discussions of the graying population generally focus on national-level fiscal effects—particularly on Medicare and Social Security. "This perspective overlooks the state and local effects and contributes to the general perception of older residents as an economic problem to be solved. But even in a narrow economic focus, the older population has to be seen as a resource, not just consumers of public services." Indeed, the report states that some areas try to recruit elderly residents, essentially trying to achieve what Appalachia already has.

That said, the report allows that poverty and disability among the elderly represent problems for Appalachia that can strain local government finances. And notes that governments everywhere must prepare for the revenue and expenditure effects that the baby-boom retirement will bring. "The Appalachian region will hardly be alone in dealing with these challenges," writes Haaga. "But the stresses will be most visible in Appalachia, with its markedly older population."

Report is available at http://www.prb.org/rfdcenter/.

Government Accountability Office. Transportation-Disadvantaged Seniors: Efforts to Enhance Senior Mobility Could Benefit from Additional Guidance and Information. August 2004. (GAO-04-971)

In this report, GAO identifies (1) federal programs that address the mobility issues of transportation-disadvantaged seniors, (2) the extent to which these programs meet their mobility needs, (3) program practices that enhance their mobility and the cost-effectiveness of service delivery, and (4) obstacles to addressing their mobility needs and strategies for overcoming those obstacles.

Noting that five federal departments administer 15 programs that are key to addressing the mobility issues of transportation-disadvantaged seniors, the report finds that some needs are still not being met, including those for trips to multiple destinations or for purposes that involve carrying packages; trips to life-enhancing activities, such as cultural events; and trips in rural and suburban areas.

The extent of the unmet needs, however, is not ascertainable given limited data. The report finds that the U.S. Department of Health and Human Services' Administration on Aging (AoA), which is required by law to provide guidance to states on how to assess seniors' need for services, has not done so. Consequently, local agencies on aging interviewed for the report used inconsistent methods to assess seniors' mobility needs.

The report also finds that local transportation service providers have implemented a variety of practices that enhance mobility and the cost-effective delivery of services. Still, several service providers interviewed said implementation of such practices was impeded by limited federal guidance and information on successful practices.

Finally, experts and stakeholders identified several obstacles to addressing transportation-disadvantaged seniors' mobility needs, potential strategies to better meet these needs, and trade-offs associated with the strategies. And GAO recommends that AoA take action to improve guidance on assessing mobility needs of transportation-disadvantaged seniors and publicize information on alternative transportation services and practices that service providers can implement to enhance senior mobility.

Report is available at: http://www.gao.gov/new.items/d04971.pdf

Call for Input

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