Rural hospice and palliative care resources related to rural health and human services, with information provided by the Rural Assistance Center Copyright 2010 Rural Assistance Center http://www.raconline.org/info_guides/hospice/ Washington DC April 14, 2010 -- Centers for Medicare and Medicaid Services http://www.cms.hhs.gov/OpenDoorForums/Downloads/H3DME041410.pdf Fri, 12 Mar 2010 13:13:03 CST http://www.cms.hhs.gov/OpenDoorForums/Downloads/H3DME041410.pdf Kaiser Health News reports that even as medical caregivers try to change practices, racial disparities in hospice care continue, according to a study in the March 8 issue of the Archives of Internal Medicine. http://www.kaiserhealthnews.org/Daily-Reports/2010/March/09/Hospice-racial-disparities.aspx?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+khn%2Ffulltext+%28All+Kaiser+Health+News+%28Full+Text%29%29&utm_content=Google+Reader Wed, 10 Mar 2010 10:52:39 CST http://www.kaiserhealthnews.org/Daily-Reports/2010/March/09/Hospice-racial-disparities.aspx?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+khn%2Ffulltext+%28All+Kaiser+Health+News+%28Full+Text%29%29&utm_content=Google+Reader St. Cloud MN April 8, 2010 -- Stratis Health http://www.stratishealth.org/events/PCoutcomes.html Mon, 22 Feb 2010 17:32:59 CST http://www.stratishealth.org/events/PCoutcomes.html Provides an overview of trends in the growth, delivery and quality of hospice care across theAmerica and includes patient demographics. -- National Hospice and Palliative Care Organization http://www.nhpco.org/files/public/Statistics_Research/NHPCO_facts_and_figures.pdf Fri, 08 Jan 2010 14:43:58 CST http://www.nhpco.org/files/public/Statistics_Research/NHPCO_facts_and_figures.pdf Funding for nonprofit or public hospitals with 100 or more beds that do not offer a formal palliative care program. -- Regence Foundation http://www.raconline.org/funding/funding_details.php?funding_id=1897 Fri, 08 Jan 2010 13:53:20 CST http://www.raconline.org/funding/funding_details.php?funding_id=1897 Chicago IL March 15, 2010 -- National Council on Aging http://www.agingconference.org/AiA10/index.cfm Thu, 10 Dec 2009 15:00:26 CST http://www.agingconference.org/AiA10/index.cfm This eleventh chapter of "Handbook for Rural Health Care Ethics", describes how rural health care providers can establish procedures to help patients and their families prepare for the end-of-life process while reducing ethics conflicts. -- Board of Trustees of Dartmouth College http://dms.dartmouth.edu/cfm/resources/ethics/chapter-11.pdf Tue, 27 Oct 2009 16:27:02 CST http://dms.dartmouth.edu/cfm/resources/ethics/chapter-11.pdf Grants to respond to unmet, local palliative care needs through new or expanded community partnerships. -- Regence Foundation http://www.raconline.org/funding/funding_details.php?funding_id=2229 Mon, 17 Aug 2009 12:41:35 CST http://www.raconline.org/funding/funding_details.php?funding_id=2229 Offers, for a fee, training and mentoring programs for starting various types of palliative care centers. -- Center to Advance Palliative Care http://www.capc.org/palliative-care-leadership-initiative/overview/ Thu, 08 Jan 2009 14:25:41 CST http://www.capc.org/palliative-care-leadership-initiative/overview/ Helps people express how they want to be treated if they are seriously ill and unable to speak for themselves. Covers a range of a person's needs: medical, personal, emotional and spiritual. See website for ordering information. -- Robert Wood Johnson Foundation http://www.agingwithdignity.org/5wishes.html Mon, 15 Dec 2008 14:44:30 CST http://www.agingwithdignity.org/5wishes.html Outlines the five stages involved in starting and implementing a quality palliative care program. -- Center to Advance Palliative Care http://www.capc.org/building-a-hospital-based-palliative-care-program/ Tue, 02 Dec 2008 09:10:35 CST http://www.capc.org/building-a-hospital-based-palliative-care-program/ Strives to help seniors and caregivers locate adequate care and senior living facilities. Site includes options to search by state and type of facility and provides resources for gathering more information on this topic. http://www.assistedseniorliving.net/ Wed, 29 Oct 2008 11:17:14 CST http://www.assistedseniorliving.net/ Ranks access to hospital palliative care programs by state, hospital size and other characteristics, and recommends actions to increase access to hospital palliative care for patients with serious illness. -- Center to Advance Palliative Care http://www.capc.org/reportcard/state-by-state-report-card.pdf Mon, 06 Oct 2008 10:24:04 CST http://www.capc.org/reportcard/state-by-state-report-card.pdf Discusses how hospice works and the requirements to receive hospice care. -- Rural Assistance Center http://www.raconline.org/newsletter/web/spring08.php#howworks Fri, 30 May 2008 10:35:44 CST http://www.raconline.org/newsletter/web/spring08.php#howworks Describes two hospice providers who have continued to grow by garnering strong community support despite the fact that rural hospices are economically vulnerable due to lower patient volumes and other factors. -- Rural Assistance Center http://www.raconline.org/newsletter/web/spring08.php#financial Fri, 30 May 2008 10:32:29 CST http://www.raconline.org/newsletter/web/spring08.php#financial Discusses rural hospices and their success, which often utilizes a variety of program models and collaborates with other organizations in their communities. -- Rural Assistance Center http://www.raconline.org/newsletter/web/spring08.php#hospice Fri, 30 May 2008 10:29:28 CST http://www.raconline.org/newsletter/web/spring08.php#hospice Describes six key components in providing care to Medicare beneficiaries at the end of life. Includes information from site visits to programs in Arizona, Florida, Oregon, and Wisconsin. Discusses challenges of providing end-of-life care services to rural residents. -- Government Accountability Office http://www.gao.gov/new.items/d0866.pdf Mon, 14 Jan 2008 13:30:07 CST http://www.gao.gov/new.items/d0866.pdf Provides the basics of practical and supportive information for cancer caregivers. -- National Cancer Institute http://www.cancer.gov/cancertopics/caring-for-the-caregiver.pdf Fri, 19 Oct 2007 09:18:43 CST http://www.cancer.gov/cancertopics/caring-for-the-caregiver.pdf Provides summaries of current and completed rural health research projects and related publications addressing the topic of hospice and palliative care, produced by the Office of Rural Health Policy's funded rural health research centers. -- Rural Health Research Gateway http://www.ruralhealthresearch.org/topics/100000070/ Fri, 20 Apr 2007 11:39:30 CST http://www.ruralhealthresearch.org/topics/100000070/ Provides information for patients and families coping with serious, complex illness. Includes a palliative care Provider Directory, a definition and detailed description of what palliative care is, and direct links to palliative care-related organizations. -- Center to Advance Palliative Care http://www.getpalliativecare.org/ Mon, 26 Mar 2007 08:08:15 CST http://www.getpalliativecare.org/ Describes nine case studies of successful hospice-hospital partnerships in a range of health care settings, communities, and other regions of the country. Contains chapters on the regulatory and legal implications of hospital-hospice partnerships plus tested methods for delivering palliative care outside of the traditional Medicare Hospice Benefit. -- Center to Advance Palliative Care http://www.capc.org/palliative-care-across-the-continuum/Hospital-Hospice-Partnerships.pdf Thu, 14 Dec 2006 00:00:00 CST http://www.capc.org/palliative-care-across-the-continuum/Hospital-Hospice-Partnerships.pdf Provides data regarding hospice patients throughout the United States. -- Centers for Disease Control and Prevention http://www.cdc.gov/nchs/data/nhhcsd/curhospicecare00.pdf Tue, 28 Nov 2006 00:00:00 CST http://www.cdc.gov/nchs/data/nhhcsd/curhospicecare00.pdf Offers health care providers and hospice administrators peer-reviewed, multidisciplinary information on the medical, administrative, and psychosocial aspects of hospice and palliative care. Individual articles and issues are available for purchase, or subscription is required to view full-text articles. -- SAGE Publications http://ajh.sagepub.com/ Mon, 27 Nov 2006 00:00:00 CST http://ajh.sagepub.com/ Works to support, empower, and educate those who care for a chronically ill, aged, or disabled loved one. Provides guides and information for congregations and parishes on informal caregiving. http://www.nfcacares.org/ Mon, 27 Nov 2006 00:00:00 CST http://www.nfcacares.org/ Describes challenges that hospices face in serving rural communities. Provides results of case studies of four different models ofhospice care in rural areas. -- University of Minnesota Rural Health Research Center http://ajh.sagepub.com/cgi/reprint/22/5/363.pdf Mon, 27 Nov 2006 00:00:00 CST http://ajh.sagepub.com/cgi/reprint/22/5/363.pdf Provides a searchable database to locate hospices in North America and the U.S. territories. Serves as a clearinghouse for consumers seeking information on choosing, paying for, and discussing hospice care. -- Hospice Foundation of America http://www.hospicedirectory.org/ Mon, 27 Nov 2006 00:00:00 CST http://www.hospicedirectory.org/ Provides results of National Home and Hospice Care Survey. Provides hospice care definitions of terms relating to agencies, patients, and discharges. -- National Center for Health Statistics http://www.cdc.gov/nchs/nhhcs.htm Mon, 27 Nov 2006 00:00:00 CST http://www.cdc.gov/nchs/nhhcs.htm Provides links to resources related to hospice, including: organizations, statistics, and publications. -- National Library of Medicine http://www.nlm.nih.gov/medlineplus/hospicecare.html Tue, 21 Nov 2006 00:00:00 CST http://www.nlm.nih.gov/medlineplus/hospicecare.html Consists of physicians and other medical professionals dedicated to excellence in and advancement of palliative medicine through prevention and relief of patient and family suffering by providing education and clinical practice standards, fostering research, facilitating personal and professional development, and by public policy advocacy. http://www.aahpm.org/ Mon, 20 Nov 2006 00:00:00 CST http://www.aahpm.org/ Discusses Medicare-certified hospices, expenditures, funding mechanisms, Medicaid funding, and hospice. -- Hospice Association of America http://www.nahc.org/facts/HospiceStats09.pdf Mon, 20 Nov 2006 00:00:00 CST http://www.nahc.org/facts/HospiceStats09.pdf